Haven’t posted in a while.
that’s GOOD NEWS!
It means I’m up and about and
feelin’ fine… YAY !
My prednisone is nice and low and
I’m finally losing weight!
Also busy busy busy preparing for my
Team’s CF Walk on the 16th!
We’re up to 29K – need to get to my goal of 35K!
WE CAN DO IT ! ! !
I just read a post from the mother of a 7 year old with CF:
A Mother’s Feelings
I am amazed at how strong she is
I am mad at the fact that she has to go through this
I hate that Conner has to suffer like this
I sit here with tears in my eyes – how can I ever complain about my suffering? I’m 42, he’s only 7 and has been through more that many ever go through…
I don’t understand why people don’t get it
CF research and development can come so far if people would only make a donation
I’ve spent countless hours since January, reaching out, reaching out
Many have been generous
Many gave whatever they can
But so many more simply chose to ignore the call for help
I don’t understand it
I’m not asking for $100, i’ll accept ANY amount – $1, $5 – anything
It’s not too much to ask for.. right?
Also, I’m reaching out for a cause that personally effects ME
Shouldn’t that make it easier for them to support me?
If only everybody would give a little, maybe we can put and end to any more CONNER stories.
So I’ve attended the CF Great Strides walk since the early 90s, after I was diagnosed. In the beginning it was me and a small group of friends and we probably raised a few hundred dollars. After a few year, my team was formed. The fundraising got into the 1-2 thousand dollar range and has increased each year. The past couple of year we raised $35,000! Amazing.
My team is so supportive and dedicated to my cause. I am also “on my team” constantly to raise funds and awareness. I often think about how annoying I am, and what they might be thinking. But, I choose to continue because the cause is so important! I joined facebook about a year ago, and I bombard my friends with CF Donation ‘asks’… I must say, I’m surprised at the very low percentage of donators – I don’t even ask for much! I’ve asked for $5, even $1, I’ve offered great prizes, and yet, nothing… Why is this. If ANYONE asked me for a donation, I would not hesitate. Why don’t people understand?
Sometimes I think they probably don’t realize my struggles, as much as I try to communicate it. I don’t LOOK sick, I don’t ACT sick, but I AM SICK! My lungs are attacking my body and there’s only so much I can do!
Then there are those loyal supporters, that do so much! I cannot express in words my appreciation! They GET it! Without them, hope for the future would not exist…
Fundraising ang Frustrated . . .