If you have followed Eva’s story, a Celebration of Love has been scheduled.
If you haven’t heard of her – check out her blog: Eva’s Blog. It chronicles her amazing journey pre and post transplant. A movie was made that was aired in Canada as well, and we are awaiting the movie in the US.
Take some time to view her blog and subsequently viewing the Celebration of Love that her family has planned for her. If you can’t make it, I believe it will be posted after the fact.
Love Love Love Eva!
You were a TRUE inspiration
I recently discovered 65 Red Roses’ live journal – A journal of Eva with CF. Unfortunately, I discovered it after she passed on… I’ve become addicted to the site and reading about her experiences and feelings. Today, this one touched me deeply http://65redroses.livejournal.com/109273.html
how courageous to put this one out there: http://s195.photobucket.com/albums/z133/jaki232/?action=view¤t=scars.flv
On my sickest of days, I’ve been here too: http://s195.photobucket.com/albums/z133/jaki232/?action=view¤t=coughing.flv
She was strong, funny, and inspirational. A legacy has been left behind. This particular post is very scary as I know one day my lungs will get to the point where I need a transplant. Then what? The prognosis after transplant is not great – you’re just given some more time with your loved ones. The constant fear – when will they reject me? will I be able to get another set? how will my son be affected.
Oh, it’s all about my son. I so do not want to cause him pain. I need to be here for him, through school, college, marriage, and yes, I want to be a grandmamma one day. He tells me he and his wife will both work and I’ll watch the baby. Oh – to know he thinks that and for me to realize it may not be possible – hurts so much.
Please… CF… stay baseline… don’t progress…