PFT History

Went to the dr today. Got a printout of alot of missing PFTs.  I updated my spreadsheet – and here it is!

I’ve had another 2% increase in PFTs – yet my upper right lobes are still junky. It’s day 23 of IVs – may extend to 5 weeks – we’ll make a decision next week.

I’ve noted IV times to the best of my records. And there’s also an entry from when I was 10 weeks pregnant!

*** UPDATED DATA 10/15/10 ***

Date	HR	Sat	FVC	FEV1 %	Notes
01/26/82				83
04/18/84			94	83
08/12/85			69	60
09/22/86			50	45
05/18/87			56	51
07/13/87			50	45
01/10/90			39	30	nwmc
06/19/91		94	38	34	very sick – mt sinai
07/23/91			37	36
01/30/92			46	36
02/11/92			61	45
05/26/92			55	45
07/21/92			54	43
08/14/92			55	43
09/08/92			53	42
09/15/92			55	45
09/25/92			59	48
12/01/92			54	44
02/02/93			57	45
03/30/93			54	43
01/01/93			53	45
06/01/93			53	45
08/05/93			52	41
08/10/93			52	41
10/05/93			59	42
11/12/93			53	41
12/03/93			62	45	2wks after lap.. And 2wks of cipro
02/04/94			59	42
04/26/94		98	58	42
07/12/94			65	49
10/03/94
10/25/94			58	43	10 wks pregnant
12/15/94					to start iv
06/12/95			60	48	1 months after birth of joseph
07/07/95			61	45	2 months after birth of joseph
08/21/95			68	50	best ever
11/13/95			58	45	on cipro
01/22/96			63	48	started cipro
10/13/99		95	58	43
10/29/99	100	95	55	42
11/04/99	90	95	52	39
11/09/99	113	89	44	31	admitted into hospital
11/17/99			59	43
12/01/99	83	97	67	48	1st day no steroids
12/29/99	120	92		34	back on IV and steroids 60
01/12/00	74	95	64	46	still on IV and steroids 30
01/19/00	83	97	54	43	no IV – steroids 10 – tobi
01/26/00	90	94	54	43
02/09/00	90	96	46	39	had a cold
02/23/00	80	96	66	47	after 1 week colistin. Felt good
04/06/00	81	96	66	47	after having a cold. 2 weeks on colistin. felt good
06/05/00	87	95	50	42	sick – started IV 6/6
06/14/00	84	94	45	40
06/21/00	77	95	58	45	after 1 week steroids/2wks IV
09/27/00	86	96	59	49	headcold 3 days prior-on ant since
07/05/01	103	95	43	40
07/12/01	107	94	51	43	just prior to Ivs
08/02/01	82	95	58	46	follow up after ivs completed 7/21
10/24/01	97	96	53	45	had a cold
12/05/01	96	98	54	43	follow up  – felt fine
12/19/01			54	41	felt fine – n.westchester hosp
01/09/02	98	98	65	50	felt fine – zithromax 3 weeks
05/08/02	100	98	66	52
07/09/02	83	97	53	44
08/05/02	69	97	59	45	on IV
08/12/02	92	97	58	48	on IV
11/04/02	105	96	55	45	reg visit – feeling ok
01/08/03				45	sick – start IV next day
01/22/03				48	still junky and on IV
02/12/03	80	96	59	45	on IV 2nd round
07/16/03	86	96	58	42	iv
10/20/03		96	63	43	sick – oral antibiotics
10/29/03		96	63	47	ivs – feel back to normal
01/20/04			59	46
02/17/04
02/20/04
03/12/04				49	end of Ivs
09/09/04				43	after 6 good months – start of sob
09/18/09					iv start – maxipeme/tobra thru 10/1/04
09/29/04				46	day 12 IV – chest heavy/tight and sob
10/07/04			63	46	still tight/sob – turns out it’s the IGE level! Need prolonged prednisone
10/27/04			63	46	on prednisone 40
12/08/04			66	46
02/02/05			68	48
02/17/05					IV thru 3/2/05 tobra/merrem/oral bactrim
03/02/05			70	51	10 days off 5 months of prednison and last day of IV
06/03/05					IV thru 6/21 tobra/zosyn d1-10/fortaz d12-end
06/15/05		97	62	44	IV day 12
06/28/05			62	45
06/22/05		98	66	45	IV day 19
07/13/05			61	44	IV start merrem/tobra/oral bactrim thru 8/10
07/27/05			60	43	1st day IV
08/10/05		97	68	50	last day IV
09/08/05			67	47
11/03/05			62	48
02/08/06		98	69	51	just completed 2 weeks oral abx and 8 day prednisone
05/22/06					iv start fortaz swithced to merrem / tobra
06/05/06			65	47
10/?/06					iv ceftaz/tobra
2/?/07					iv ceftaz/tobra
05/14/07					iv tobra/ceftaz sw to merrem day 11
05/23/07			63	43
05/29/07			70	49
09/27/07			59	43
12/17/07			64	48
01/17/08			62	43
02/29/08			64	47
03/12/08			66	48
03/26/08			66	47
07/24/08			60	45
10/?/08					iv merrem/tobra : start of long run on prednisone
12/08/08			59	38
04/16/09			56	41	to start Ivs today
04/29/09			61	45	day 14 Ivs – merrem/tobra
05/27/09			57	40	prednisone 15
06/08/09			69	43	day 10 doxy/cipro
07/13/09			69	43	to start Ivs today
07/27/09			71	45	day 14 Ivs – merrem/tobra
09/08/09			67	41
10/05/09			61	45	IV – merrem/tobra
11/04/09			57	43
01/12/10			49	41	cipro/doxy
01/25/10					iv imipenim/tobra – 17 days
03/18/10			49	39	prednisone 30mgs
03/23/10					iu start – ceftaz/tobra – plan 4-5 weeks
03/31/10			53	43
04/15/10	85	96	55	45	day 23 IV fortaz/tobra, prednison 7.5 mgs
04/29/10			59	44
09/23/10		95	44	36	started Ivs this night – tobra/imipenim
10/08/10		95		35	switched imipenem to ceftaz 2 days agao – bad hives
10/15/10		95		39	3 Weeks IV – continue to 4 weeks

Here’s my FEV1 trendline: