one day at a time . . .

PFT History

Went to the dr today. Got a printout of alot of missing PFTs.  I updated my spreadsheet – and here it is!

I’ve had another 2% increase in PFTs – yet my upper right lobes are still junky. It’s day 23 of IVs – may extend to 5 weeks – we’ll make a decision next week.

I’ve noted IV times to the best of my records. And there’s also an entry from when I was 10 weeks pregnant!

*** UPDATED DATA 10/15/10 ***

Date HR Sat FVC FEV1 % Notes
01/26/82 83
04/18/84 94 83
08/12/85 69 60
09/22/86 50 45
05/18/87 56 51
07/13/87 50 45
01/10/90 39 30 nwmc
06/19/91 94 38 34 very sick – mt sinai
07/23/91 37 36
01/30/92 46 36
02/11/92 61 45
05/26/92 55 45
07/21/92 54 43
08/14/92 55 43
09/08/92 53 42
09/15/92 55 45
09/25/92 59 48
12/01/92 54 44
02/02/93 57 45
03/30/93 54 43
01/01/93 53 45
06/01/93 53 45
08/05/93 52 41
08/10/93 52 41
10/05/93 59 42
11/12/93 53 41
12/03/93 62 45 2wks after lap.. And 2wks of cipro
02/04/94 59 42
04/26/94 98 58 42
07/12/94 65 49
10/03/94
10/25/94 58 43 10 wks pregnant
12/15/94 to start iv
06/12/95 60 48 1 months after birth of joseph
07/07/95 61 45 2 months after birth of joseph
08/21/95 68 50 best ever
11/13/95 58 45 on cipro
01/22/96 63 48 started cipro
10/13/99 95 58 43
10/29/99 100 95 55 42
11/04/99 90 95 52 39
11/09/99 113 89 44 31 admitted into hospital
11/17/99 59 43
12/01/99 83 97 67 48 1st day no steroids
12/29/99 120 92 34 back on IV and steroids 60
01/12/00 74 95 64 46 still on IV and steroids 30
01/19/00 83 97 54 43 no IV – steroids 10 – tobi
01/26/00 90 94 54 43
02/09/00 90 96 46 39 had a cold
02/23/00 80 96 66 47 after 1 week colistin. Felt good
04/06/00 81 96 66 47 after having a cold. 2 weeks on colistin. felt good
06/05/00 87 95 50 42 sick – started IV 6/6
06/14/00 84 94 45 40
06/21/00 77 95 58 45 after 1 week steroids/2wks IV
09/27/00 86 96 59 49 headcold 3 days prior-on ant since
07/05/01 103 95 43 40
07/12/01 107 94 51 43 just prior to Ivs
08/02/01 82 95 58 46 follow up after ivs completed 7/21
10/24/01 97 96 53 45 had a cold
12/05/01 96 98 54 43 follow up  – felt fine
12/19/01 54 41 felt fine – n.westchester hosp
01/09/02 98 98 65 50 felt fine – zithromax 3 weeks
05/08/02 100 98 66 52
07/09/02 83 97 53 44
08/05/02 69 97 59 45 on IV
08/12/02 92 97 58 48 on IV
11/04/02 105 96 55 45 reg visit – feeling ok
01/08/03 45 sick – start IV next day
01/22/03 48 still junky and on IV
02/12/03 80 96 59 45 on IV 2nd round
07/16/03 86 96 58 42 iv
10/20/03 96 63 43 sick – oral antibiotics
10/29/03 96 63 47 ivs – feel back to normal
01/20/04 59 46
02/17/04
02/20/04
03/12/04 49 end of Ivs
09/09/04 43 after 6 good months – start of sob
09/18/09 iv start – maxipeme/tobra thru 10/1/04
09/29/04 46 day 12 IV – chest heavy/tight and sob
10/07/04 63 46 still tight/sob – turns out it’s the IGE level! Need prolonged prednisone
10/27/04 63 46 on prednisone 40
12/08/04 66 46
02/02/05 68 48
02/17/05 IV thru 3/2/05 tobra/merrem/oral bactrim
03/02/05 70 51 10 days off 5 months of prednison and last day of IV
06/03/05 IV thru 6/21 tobra/zosyn d1-10/fortaz d12-end
06/15/05 97 62 44 IV day 12
06/28/05 62 45
06/22/05 98 66 45 IV day 19
07/13/05 61 44 IV start merrem/tobra/oral bactrim thru 8/10
07/27/05 60 43 1st day IV
08/10/05 97 68 50 last day IV
09/08/05 67 47
11/03/05 62 48
02/08/06 98 69 51 just completed 2 weeks oral abx and 8 day prednisone
05/22/06 iv start fortaz swithced to merrem / tobra
06/05/06 65 47
10/?/06 iv ceftaz/tobra
2/?/07 iv ceftaz/tobra
05/14/07 iv tobra/ceftaz sw to merrem day 11
05/23/07 63 43
05/29/07 70 49
09/27/07 59 43
12/17/07 64 48
01/17/08 62 43
02/29/08 64 47
03/12/08 66 48
03/26/08 66 47
07/24/08 60 45
10/?/08 iv merrem/tobra : start of long run on prednisone
12/08/08 59 38
04/16/09 56 41 to start Ivs today
04/29/09 61 45 day 14 Ivs – merrem/tobra
05/27/09 57 40 prednisone 15
06/08/09 69 43 day 10 doxy/cipro
07/13/09 69 43 to start Ivs today
07/27/09 71 45 day 14 Ivs – merrem/tobra
09/08/09 67 41
10/05/09 61 45 IV – merrem/tobra
11/04/09 57 43
01/12/10 49 41 cipro/doxy
01/25/10 iv imipenim/tobra – 17 days
03/18/10 49 39 prednisone 30mgs
03/23/10 iu start – ceftaz/tobra – plan 4-5 weeks
03/31/10 53 43
04/15/10 85 96 55 45 day 23 IV fortaz/tobra, prednison 7.5 mgs
04/29/10 59 44
09/23/10 95 44 36 started Ivs this night – tobra/imipenim
10/08/10 95 35 switched imipenem to ceftaz 2 days agao – bad hives
10/15/10 95 39 3 Weeks IV – continue to 4 weeks

Here’s my FEV1 trendline:

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Comments on: "PFT History" (6)

  1. You are a warrior! Look at how you fought to maintain those numbers. In fact, they’re not numbers. They are code to cfers that tell a story. And your story is a good one.

  2. I like that comment! Thanks 🙂

  3. So, the Unknown Cystic read my PFT results and posted the following on their blog:
    http://unknowncystic.wordpress.com/2010/04/14/the-matrix-and-pulmonary-function-test-pft-results/
    LOVE IT !
    Thanks Unknown Cystic !
    Your interpretation is perfect !

  4. Oh, my gosh. Look at all of these records. I feel like an idiot for not having mine. Part of the reason is that I jumped around, doctors quit or fired me, etc. It will take a couple visits to absorb this record.

  5. BTW, another comment has come to mind. The way you’ve entered some comments on the side is really cool. The PDF becomes the literal outline for the story.

  6. so as you can see I’ve been a bit OCD – but now it’s great to have the history. I wish I was more thorough with the notes. Will try to do better going forward 🙂

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