So it’s a week now. I’m tolerating the meds, just making me tired – but not too bad. The schedule actually works well – 7am – 30 minutes, 3pm 1.5 hrs and 11pm 30 minutes.
Went to the dr yesterday. My right lung is still congested – but improving. I was able to blow a 43%, so that’s improving too. 3 more weeks on IV. I dropped my prednisone to 15mgs today. We’re getting into the danger zone. It’s been once I get down to the lower levels that problems start to appear again. Hoping the IVs will offset this. We’re also gonna get back on the aztreonam nebs after my IVs are over – this way i’ll be one month on colistin and one month on aztreonam. Hopefully this will help minimixe infections..
I have gained 11 pounds since increasing the prednisone and it feels terrible – bloated and swollen. Tight clothing and it also effects my breathing. Again, people say ” oh – you look great – you can’t even tell” – blah blah blah – they’re just being nice.
My husband doesn’t care about me gaining weight – he says I just look healthy – but – the other day – I was getting dressed and he walked in and I caught his face! He was shocked to see the belly bulge over the pants! He didn’t think I noticed – but when I told him – he said – it’s no big deal.
It is a big deal! I hate the feeling! It’s so hard. OK – complain about weight gain when CF is the problem I should be complaining about. Well – I am normal! And the weight also effects my breathing.
OK – I’ve ranted long enough…
Till next time 😉